A guest post from Elizabeth, mom of two. “Creating my map helped me reconsider my own role in my son’s care plan. I have come to see myself as the central facilitator between many separate agencies. With this awareness, I’ve been able to better communicate with my son’s practitioners and more actively embrace the myriad tasks of care management. The exercise allowed me to step back and view Charlie’s system of care with new perspective. I found comfort in all these little circles, each representing a different system working to support my son and our family.”
Tag Archives: Huffington Post
More breakfast table talk
About a year ago I wrote about a brutally and beautifully honest conversation that I had with my younger child about their brother’s developmental disability. A wise friend commented that our conversation would be one of many “periodic check-ins.” My friend was right. Not surprisingly, the last few weeks have created a need for more …
Care mapping conversation deepens on Huff Post Live
The HuffPo article by Lisa Belkin, “Gabe’s Care Map,” generated a lot of conversation and interest in creating data-rich, holistic snapshots of just what it takes to raise our kids. I’ve heard from lots of parents who are already making their own. It’s so exciting! Lisa and I continued the conversation on Friday on a …
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Love, even when it’s hard
Lisa Belkin at the Huffington Post did a wonderful story on me, my family and my Care Map on Friday. So many good things are coming out of it: new friends, new thought partners, new mentors, new opportunities. In some ways, the impact is easiest to capture in the stats: 9,000 visits to the blog, …