As a parent of a young adult with physical and developmental disability and multiple chronic conditions and as a healthcare change agent, I’ve been thinking about how paradigms in healthcare influence how I see and experience my life and my work. In particular, I’m noticing how a new paradigm in particular is giving me a greater sense of ease and effectiveness.
I can’t even capture the intensity of the dark feeling now, but it was there, even though the circumstances seem trivial now. In one flash I saw myself forty years from now tying his shoe laces, wiping his mouth and his bottom, and my mind did a high-speed rewind through all of the thousands of tying and wiping moments I’d have between then and now. Zero to despair and rage in sixty seconds. It was hot and black and tight.