Reading: My Baby Rides the Short Bus

As a parent of a child with special needs, I often shy away from memoirs and auto-biographies of self-advocates and family members.  I know I should want to be more informed, but after a day of IEP meetings, behavior plan implementation and toilet training, I tell myself that I simply can’t find the energy, let …

Scene from a breakfast table

INT. AT A BREAKFAST TABLE – MID-MORNING The table is set for four although only two people sit at the table — an energetic seven-year-old DAUGHTER and a slightly groggy and disheveled woman, her MOTHER. At the two other place settings, a full but untouched bowl and a cup of obviously cold coffee sit opposite …

What do you do all day?

Not too long ago I ran into an acquaintance. We were getting caught up on things and I told him how I had sold my business a year ago so that I could focus on my child’s needs full-time. “But doesn’t he go to school all day?” he asked. “What do you do all day?” …

It takes what it takes

A few weeks ago I wrote about the luscious, feet-up summer I was having. The contrast between last month and this one couldn’t be more stark. Not only is it back-to-school for the kids, but back-to-school for me and a big mental transition out of a period of grieving for my father and my role as full-time case manager …

Siblings talk about the sibling experience

Following yesterday’s post about the importance of hearing more from siblings of special needs, someone pointed out this great video from the Arc of King County in Seattle, Washington. Watching the video brought to mind a stressful evening last week where my younger child, who is typically developing, expressed their feelings of just how unfair …

Families pull up a chair to the table

After years of asking myself questions like “Why am I filling out this medical form when this information is already in their computer?” or “Why does this doctor only see patients during school hours?” and other such silly observations along the journey through parenting a child with special needs, I suddenly find myself invited by …

My gut

In 10th grade business class, my teacher Mrs. Goldstein taught our class a model that promised to make us more successful in life. When faced with a difficult decision of whether or not to do something, she counciled us to execute the following strategy: At the top of a sheet of paper (this was the …

Pray that the road is long

I was walking down the street a couple of weeks ago and a book was lying on a bench with a sign that said, “Free,” on it. In keeping with my “If it’s free, it’s for me” life philosophy (aka freganism) I picked it up and was delighted to see that it was a dictionary …

Let’s all go to the lobby and get ourselves a snack

Things have been silent on the blog front lately, not for any particular reason other than that I’m taking a little break from trying so hard. A time-out of sorts — a pause, a respite, a recess. Dead air, as they say in television. As Mother Nature unabashedly does her thing, pouring out verdant lushness, …

What’s in a number?

My son celebrates a birthday this month. It is a joyful occasion. Like all parents, I spend the days leading up to it planning surprises, buying and wrapping gifts, reflecting on how quickly the years are flying by. We are celebrating it not once (with cupcakes in bed on birthday morning), not twice (with a birthday …