Opportunity for advocacy: Did you make a care map?
My care map generated a lot of attention and new friends over the last few…
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January 24, 2013
A gift from the messengers
Looking at one of the paintings, for one moment I am able get my arms around the fullness of my own parenting experience. The terror and the peace. The peace and the terror. It’s there, in oil on board, just right there in four square feet, inviting me to react, to feel it, to stay with it. So I do.
October 28, 2012
Co-production and advocacy / Improving healthcare / Leadership and growth / My toolkit / Special Needs Parenting
My Care Map, or the picture that tells a thousand words
About a year ago I was asked to talk to some primary care physicians about…
September 19, 2012
Photo by Rémi Walle
I get by with a little help from my friends
Researchers at Brigham Young University recently released findings that for people raising young children with disabilities, certain types of social relationships are typically more harmful and others more helpful for parents.
September 14, 2012
Co-production and advocacy / Disability / Improving healthcare / My toolkit / Special Needs Parenting
10,000 (or so) Hours of Practice
As I approach my 10th year milestone of parenting a child with special needs, I…
June 22, 2012
Don’t Google
Back in the day, when my son's medical symptoms and developmental delays started slowly revealing…
February 1, 2012
A few minutes in the hospital lobby
I arrived a little earlier than expected at our local pediatric hospital last Friday. I…
December 7, 2011
Co-production and advocacy / Disability / Improving healthcare / My toolkit / Special Needs Parenting
Asking Stupid Questions, aka Beginner’s Mind
Here's another in my toolbox series of techniques that inspire me to live with joy,…
November 22, 2011
Pushing my physical body to its limit
I am not a naturally athletic person. Lest you get the impression from the post’s…
April 6, 2011