The Birthday Girl Gives Everyone Else a Gift

This Saturday my son and daughter went to a birthday party of a very close friend, let’s call her the Birthday Girl, who recently moved to another town. Though the Birthday Girl’s older sister has been acutely aware of my son’s developmental differences for the past few years – I wrote about out a wonderful …

My six word memoir(s)

My airwaves have been silent lately. Some new professional opportunities have offered me the chance to share my perspective as a special needs parent to such a remarkable degree that I seem to have little time and few words left for blogging. But an opportunity came up last week to create and share my six-word …

Overtaken or working through?

Last week I wrote about how my professional and personal worlds are colliding now that I’ve started working for a project that advocates for kids (of all kinds, but especially with special needs) and their families in healthcare reform. Sitting down to my journal this morning, I flipped back through the past few weeks and …

A few minutes in the hospital lobby

I arrived a little earlier than expected at our local pediatric hospital last Friday. I have spent plenty of hours there with my son, both inpatient and outpatient, or visiting friends whose children are also patients, providing plenty of opportunities for a lot of suffering. On this day though, I’m here in a more neutral …

A new perspective on sinking and swimming

Other people’s dreams can be so tedious, I know, but it can’t be helped. I’m at a support group with other parents of special needs kids; I can’t see the other participants (am invisible to them, too) because the room is all obstructed views. I ask if we can re-arrange the seats, but am told that …

My gut

In 10th grade business class, my teacher Mrs. Goldstein taught our class a model that promised to make us more successful in life. When faced with a difficult decision of whether or not to do something, she counciled us to execute the following strategy: At the top of a sheet of paper (this was the …

Gloriousness and Wretchedness

Life is glorious, but life is also wretched. It is both. Appreciating the gloriousness inspires us, encourages us, cheers us up, gives us a bigger perspective, energizes us. We feel connected. … On the other hand, wretchedness–life’s painful aspect–softens us up considerably. Knowing pain is a very important ingredient of being there for another person. …

Getting unstuck

Certain emotions — like fear, anger and sadness — are a little sticky for me. Among the skills that helps one get through life (like being able to jumpstart a car and make good martini) “processing painful emotions” isn’t one I’ve mastered. It’s not that I don’t feel those emotions, but I don’t always seem …

You get me…you really, really get me

I just came home from two days of special needs parent training. It was the kind of weekend that makes my life seem almost glamorous—free hotel with a glorious night of uninterrupted sleep, food flowing all day with no dishwasher to load afterward, a cozy bar with a fireplace…oh, yeah, and the chance to learn a …