Waiting for the New Health Care
In my mind, I envision the future. Here's what it looks like.
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February 23, 2013
Photo by Agê Barros
Co-production and advocacy / Disability / Improving healthcare / Leadership and growth / Special Needs Parenting
Bushwacking: Four stages of becoming a family leader
Becoming a leader can feel intimidating. It requires new skills and courage at every step. It can be helpful to notice that leaders aren’t “born with it,” but are called to it. We can learn these skills. If we’re lucky, we have support and friendships for companionship along the way.
November 12, 2012
Co-production and advocacy / Disability / Improving healthcare / Leadership and growth / Special Needs Parenting
Answering questions together
Last weekend I travelled to Washington DC to help create a new model for government-funded…
November 3, 2012
Co-production and advocacy / Improving healthcare / Leadership and growth / My toolkit / Special Needs Parenting
My Care Map, or the picture that tells a thousand words
About a year ago I was asked to talk to some primary care physicians about…
September 19, 2012
Co-production and advocacy / Disability / Improving healthcare / Leadership and growth / Special Needs Parenting
Getting into the driver’s seat
In my 10 years as a parent of a child with significant medical and developmental…
July 31, 2012
Photo by Hello I'm Nik
Co-production and advocacy / Disability / Improving healthcare / Leadership and growth / Special Needs Parenting
Transition baby steps that lead to major milestones: It starts with YOU!
Recently my colleagues at the Federation for Children with Special Needs have been talking about…
June 29, 2012
Co-production and advocacy / Disability / Improving healthcare / My toolkit / Special Needs Parenting
10,000 (or so) Hours of Practice
As I approach my 10th year milestone of parenting a child with special needs, I…
June 22, 2012
No Pity, part 1
I bring along my son, who attends a special education school many miles away, when…
April 3, 2012
Overtaken or working through?
Last week I wrote about how my professional and personal worlds are colliding now that…
February 22, 2012
Don’t Google
Back in the day, when my son's medical symptoms and developmental delays started slowly revealing…
February 1, 2012