About me

Hi! I’m Cristin Lind. After spending years coordinating healthcare and other services for my son, I now lead and support initiatives in which patients and their families, clinicians and policy makers collaborate to create better health and care.

In 2013 I moved from Massachusetts with my family to Stockholm, Sweden. I continue my work on improving health care through innovative partnerships, community organizing and co-design methods. I’m also passionate about the inner work of change agents, including personal development and leadership.

I welcome you to join in an on-going conversation about healing health care by subscribing to this blog, in which I write regularly about the experience of living in a complex special needs family and working to create and support change, or by connecting on Twitter @cristin_lind or LinkedIn.

Curriculum vitae

For a longer CV including a list of selected publications, feel free to read it here.

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6 thoughts on “About me

  1. I was very enlightened by your blog, I too am the parent of a special needs child with Noonan’s Syndrome and am proud to be my child’s best advocate. It’s been a long road… to JOY!

    1. I love the way you put that, Debbie. The long road to joy. For a while there it felt like a forced march, but luckily that didn’t last forever. Joy indeed, that’s where we’ve ended up. Say hi to all my NS peeps!

  2. I am very interested in your blog and care map. I am the parent of an adult with special needs (he is 19 and has a website business, Alex’s Art Loft). My care map has tons of holes in it because of the uncertainty of adult services and the challenges of helping someone with autism run and sustain a business, not to mention the paperwork and agency confusion. And the heartbreak and sleepless nights that he may not get the services or the quality of care that he needs. Care maps go through many edits as the years go by…Diana Martin

    1. I can’t wait to check out Alex’s site. Yes, these are only snapshots, outdated almost the minute you put the pen down. Transition to adulthood is certainly a huge challenge. I wish you the best and hope you both connect with some other great families for support and company.

  3. Dear Cristin,

    A few months ago you gave me permission to show your Care Map as part of a larger discussion within our organization. That has been so helpful to helping our providers understand that while medical science and services are critically important, Medically Complex Children and their families face many more complexities than just the medical ones. We are now engaged in several initiatives surrounding Medically Complex Children, which brings me to the task of this note. I know that you are now living in Stockholm; but would you have an interest and availability to meet with key individuals in this discussion – at our expense, of course. Those individuals might include our Executive Commissioner for The Texas Department of Health and Human Service, our own staff and executives, and maybe even spend time with the leadership of our national association, Children’s Hospital Association. I thought it best to start with this question and should you have a favorable reply we can always work out the inevitable details. Feel free to respond to me directly.

    I look forward to hear from you at your convenience.

    Best regards,

    Larry

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