Synchronicity, Luck or Fate (whatever it is, I’ll take it!)

Well, it’s official. The blood test results are in and my son does indeed have a new gentic diagnosis as I wrote about suspecting a couple of months back. It feels weird. I’m not going to go into the details of which arm of which chromosome has been duplicated or deleted here because what interests me more …

Sitting in the Charnel Ground

Heads-up: This post contains some dark images, but I’m letting them out in the hopes of letting some sunlight in, shining some light onto what I’m sure many struggle with. The moment starts out mundanely enough. Standing in line for coffee at our local donut shop, I attempt to distract myself from the racks of …

It’s complicated

I am having a really hard time figuring out what to make of my son’s soccer practice this past Saturday. Can you help me figure it out? As part of our town’s recreation department’s efforts to create recreation opportunities for kids with special needs, they’ve started an adaptive soccer league. High school varsity and JV …

“Let there be peace, welfare and righteousness”

Reflecting on Rev. Martin Luther King, Jr.’s contribution to peace  thought I’d share a blessing by Hagen Hasselbalch which I found in Earth Prayers. It so beautifully captures the open-armed ambitions of the peace movement inspired by folks like Dr. King: the desire for justice, for access, for respect for each other and the earth. Let …

Show me love

Everyone shows love in different ways. Children with special needs are no different in that regard, maybe even hardwired to be more different than usual. While Williams Syndrome is associated with a “cocktail party personality,” one of the defining characteristics of Autism Spectrum Disorder is a challenge to make typical social cues. Down Syndrome literature is …

No big whoop?

The special needs blogosphere and social media outlets are abuzz about this recent Target ad featuring a boy with Down Syndrome. This kid is cute. Really cute. It’s great to see him there. The big news isn’t the fact that he’s in the shot; what people seem to be focusing on is the fact that …

The most wonderful time of the year

A woman visits her rabbi to ask his advice on how to handle her family’s cramped living quarters. “Rabbi, we only have one small room and my husband and children and I are always bumping into each other. It’s so noisy and chaotic. What should I do?” The rabbi asks, “Do you have chickens, goats and …