What a difference a year makes

I’ve had an active, entertaining weekend. Yesterday I attended a Special Needs conference hosted by a statewide consortium of agencies that serve families and children with special needs; this morning I joined 6,000 festive folks to run 5K through our town.

Because both events occurred on the same weekend last year as well, I found myself playing “Compare and Contrast” with my life as it is now and how it was one year ago. 

I can see now that a year ago, I was in distress. For a couple of years (yes, years) I had been ignoring a gnawing suspicion that my special needs child’s school placement was ineffective. He was happy, he loved his teachers and he seemed to be making progress, but that nagging question of whether he could be making more progress and whether this progress was enough to get him ready for adulthood was always churning in the deep, dark recesses of my mind. I had no idea who to ask for help, and I was busy running a successful niche consulting and training firm, tending a marriage, helping to care for my sick and aging father, raising two kids, unloading the dishwasher, juggling, balancing. I was keeping things at an even keel, so something must be going right.

A year ago, the bubble burst, the mirror cracked, the wool was pulled back from my eyes, whatever you want to call it. During a conversation with my husband about the possibility that he could switch jobs within his company, I spontaneously and without warning floated the idea that maybe, just maybe, there was a chance that this new job would pay a little more so that I could sell my business in order to focus on taking care of our family.

I have no idea where those words came from. I had never even dared think them. But once they escaped my lips, I knew that I could never get them back in again. Raise or no raise, I knew that all I wanted to do was to focus full-time on what our family needed. I even felt physically different. I told friends at the time that it was as if every single cell in my body celebrated the fact that I was ready emotionally ready to do whatever needed to be done. 

Fast forward a year and much has changed. Next week my child will start in an out-of-district school that we are confident will effectively meet his needs. (Don’t worry, suppression is no longer my MO.) His cardiac issues, which were so severe as to require two interventions in seven months a few years ago, are so improved that he no longer needs medication. He started private speech and OT therapy to fill some gaps while we waited for our school district to catch up with us. He’s grown several inches and even a few pounds.

He’s not the only one changing. I’ve taken trainings, joined list-serves, found financial help, made some new friends, started therapy, read books, lost nearly 20 pounds, sold my business, de-cluttered most of the house, and started a rigorous kundalini yoga practice.  My husband and took a first vacation, our first without the kids, to a Greek island. I turned 40.

Not all of the change has been good. After many years of struggling with a chronic illness, my father passed away six weeks ago. It was an intense and sad process and the effects are continuing to unfold. The fact that I could spend much more time with him during this past year is something I’m grateful for. He knew of my intense relief that his grandson would be starting at a wonderful new school. I’m grateful for that too.

A year ago if you had asked me “What’s new?” I might have answered “Nothing much.” Same old routine doctor follow-ups, same old bills, same old dishwasher to unload and re-load. This year, that’s just not true. Things change. So what’s new? Everything.

Published by Cristin Lind

Facilitator, consultant, speaker for better health and care through patient-professional partnership. Passionate about helping change agents build courage and agency. She/her.

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